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Filed under: chronic fatigue syndrome, myalgic encephalomyelitis
Patient Actions
by wpAdmin on Sep 24th, 2011
Environmental Illness/Multiple Chemical Sensitivity Petitions Position Statement: Multiple Chemical Sensitivity Italian Petition for recognition of Multiple Chemcial Sensitivity (includes English translation) Dirty Air Acts in Congress: Brought to you by big, corporate polluters (US only) Take action for smarter regulation of chemicals in cosmetics Fibromyalgia Advocacy Faces of Fibromyalgia Fibromyalgia Petitions Make Doctors More Aw...Read More.. Tags
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Filed under: XMRV, chronic fatigue syndrome, myalgic encephalomyelitis
XMRV Bloggerama Day – We’re with the WPI!
by wpAdmin on Jun 6th, 2011
With the recent two negative studies published in Science, their subsequent Expression of Concern,and the NIH press release stating that XMRV is due to contamination, the scene is now set for the pulling of the Lipkin study. As a community we need to act together and act fast. We need to express our deep discontent at what is a seriously damaging blow to the future of XMRV research. On Friday 10th June we will publish our blog articles ...Read More.. Tags
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Filed under: Uncategorized
May 12th Tweet-off!
by wpAdmin on May 10th, 2011
Many neuro-immune disease sufferers use Facebook to share information and raise awareness and now more and more also use Twitter to campaign and network. Wouldn't it be great if we could raise awareness of neuroimmune disease by getting topics trending on Twitter? To help increase our chances of trending on Twitter we need more people to join and to help spread awareness. Many ME advocates and their friends and families have already begun t...Read More.. Tags
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Filed under: Featured
A Guide To Raising Awareness On Twitter
by wpAdmin on Mar 29th, 2011
Detailed instructions on how to sign up to Twitter can be found here: http://support.twitter.com/groups/31-twitter-basics/topics/104-welcome-to-twittersupport/articles/100990-how-to-sign-up-on-twitter Once you've signed up the first step is to begin to follow other members in which you have an interest. For example many celebrities Tweet including Stephen Fry http://twitter.com/stephenfry and Lance Armstrong http://twitter.com/lancearmstro...Read More.. Tags
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Filed under: Featured
Action Now
by wpAdmin on Mar 11th, 2011
Action Now, a patient-driven initiative that formed in April 2010, aims to make neuroimmune disease advocacy more accessible to sufferers and their loved ones by creating and promoting patient-friendly campaigns and keeping an up-to-date list of current actions. The UK based Policy Change Now campaign is an on-going Action Now initiative. If you are interested in finding out more about our organisation, or would like to find out ho...Read More.. Tags
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Filed under: Featured
ME/CFS Blogger Nation
by wpAdmin on Mar 10th, 2011
Following the success of XMRV Bloggerama Day and PACE isn't for ME, Action Now has created a special blog ring for all ME and CFS bloggers wishing to share their knowledge about this devastating neuroimmune disease. We invite you to join us. Together we can make a difference. What is a Blog Ring? A blog ring is a continually growing circle of blogs with a common focus or theme. Each ring has its own small banner (or code) connecti...Read More.. Tags
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